I don't even know where to begin but I know I need to have an outlet somewhere... this seems like the right place.

On the 21st August we took Stephi to PMH for croup. She was treated and we came home within a few hours. Since that time I have noticed her having episodes where her head shakes and whichever limb is up can shake as well. I've so far only noticed it while she is feeding but it could be happening at other times as well.

After a few weeks of noticing her do this she had a morning where she had about 3 episodes during one feed. After making contact with a wonderful friend who has been through this sort of thing with her own child I got straight onto making an appt for Stephi to be seen by a new GP (we ditched the last practice after one too many episodes of crap treatment etc) We were seen within 24 hours by the new GP and she was wonderful. She genuinely listened to my concerns and decided it was time to refer Stephi to a paediatrician.

The wait to see the paed was 6 weeks Being unsure if this was suitable I rang the GP back and was given a few other paeds to try.... their waits were until at least beginning of November so at least 2 months and one more like 3 months!

So after our 6 week wait Stephi was finally seen last Friday by a really lovely paed. I'm really pleased we stayed with him as he was so lovely with her and really pleasant and polite with me. He had kept us waiting due to a meeting and hten being called to the delivery suites and immediately apologised for the wait in a very genuine manner.

I explained what I had witnessed and then he examined her. He couldn't detect any abnormalities that could be causing "seizures" but did note that she kept her left hand fisted and had some increased/decreased sensitivity in her left foot and leg. I really can't remember as I was a bit shocked that there were abnormalities detected that didn't relate to why we were there.

We discussed options which included waiting 3 months to just watch her and see what happened and then maybe needing to get her to have a CT scan which would mean anaesthesia or send her for a cranial ultrasound now while her fontonelle was still open. My immediate decision was the ultrasound - I don't want to put my little girl through an anaesthesia unless absolutely necessary.

She had the ultrasound on Wednesday and it wasn't a pleasant experience for her. Obviously its not invasive by way of the actual study but she had to remain as still as possible for it to be performed. The more she moved the logner it took. We had a wonderful doctor performing it though and he was really understanding. Thank goodness they only have paediatric doctors perform these. I was quite disappointed though as Id rung the day before to find out if it would be best for her to be awake or asleep and the response I received was that I'd be told on the day.... that doesn't work when you're dealing with a 7 month old. However, I provided feedback through the company website and have been contacted to follow up on it so hopefully this won't be repeated for other parents in future.

Preliminary results of the ultrasound are that no abnormalities were detected but we see the paediatrician again on Monday for the official result.

She is still occasionally having the episodes of tremors but as far as I can tell her hand movements are fine and it was just a one of situation. The episodes are not predictable at all and can happen a few times in a day or not at all for a week or more. I did start out trying to video her when it happened but have missed it so many times that I've given up. I was trying to have my mobile phone handy with the video function up and running

Anyway, I don't really know what to think. I would kind of like a diagnosis so that I knew what we were dealing with but at the same time she is hitting all her developmental milestones well and truly so I don't feel we have huge cause for concern